Journal of Jackie

By Jackie18

Working hard

Rafi sat on the side of the bed with the physios again today. With his head supported he is able to nod slightly and shake his head in answer to questions. Communicating with Rafi is still very difficult, sometimes he is able to blink or squeeze your hand to indicate yes, but its not always consistent due to tiredness. He tires very easily,so was exhausted after 5 minutes sat up.
His lovely friend Olivia visited today with her Mum. I haven't seen her since Rafi was at primary school, she looks so grown up now.
This evening Rafi has another high temperature, not sure why, but it's always a worry to me.He was supposed to be having a shunt fitted tomorrow but this has been cancelled until he feels better (antibiotics have been started)

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