All I want is a day without chronic pain and without the intermittent and unexpected acute pain that comes from nowhere. I would like to be able to answer the question "how are you doing?" with "good thanks" not a shrug of the shoulders and avoidance of further details because I am embarrassed, uncomfortable and likely to cry or break into a rage.
I would like to be able to adequately describe how this feels without whining
Most of all, I want someone with the power to help me to do so, so that I stop questioning my sanity and so I can have my life back.
Apparently I am asking too much.

Sorry. I needed to say that, for me.
That's all.