My topsy-turvy life

By Rathmandu

TOF Conf.

We all had an early start for a Saturday to get up to Warrington for this year's tofs conference. The talks were really useful and informative with tips on managing the TOF cough with traceomalacia, managing it all as Owen grows and the mental health impacts it's had on all of us. There was even this talk from one of the surgeon's that's operated on Owen this year.
It was also nice to meet some other parents that had been through what we had, and worse. I think it definitely helps to know you're not alone and the support group has been invaluable at times.

tofs: tracheo-oesopageal fistula support

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