Busy day

This morning Rafi was visited by the Physio,ENT nurse, dentist, play specialist, and learning mentor!
He had another go on the tilt table, but it was cut a bit short as he had a coughing fit ( damn trachy )
The ENT nurse said that he could try the dye test again next Wednesday.
The play specialist brought round a big colour-changing bubble lamp and a projector which projects images onto the ceiling.
Everyone keeps saying how much better Rafi is looking which is great to hear.
It's 11.30 pm and me and Kiera are still at Rafi's bedside waiting for him to settle properly. It's so frustrating ( for him and us) that he can't tell us what's bothering him.