My topsy-turvy life

By Rathmandu

Superhero skills

A bit of a long drive over to Leicestershire for the TOFS Summer Superhero Spectacular. Its the first time they've been able to do anything like this for a few years and it's good for the kids to socialise with other kids born like them and for the parents to know that they're not alone and that mantra, "it does get better" is true. TOFS were so valuable to us when Owen was first born and I think it's really important to support this kind of thing. Of course, being superhero based meant we didn't have a choice.

The entertainer was great and got all the kids engaged, teaching them 'superhero' skills like the classic balancing cups on heads.


TOFS: Tracheo-Oesopageal Fistula Support

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