Suburban Living

By amandarosephoto

Wall-E accepts the Ice Bucket Challenge

Wall-E and I would like to raise awareness that the ALS Ice Bucket Challenge, as Robin Williams passing, says an awful lot about our relationship with celebrity.

The more media attention this is getting, the more it has become about 'look at this celebrity in a wet t shirt/swimwear/dumping water on themselves' and which celebrity friends they nominate.
I can't recall any video or news articles featuring a celeb video that mentions how or where to donate.
It's supposed to be about raising awareness, not raising celebrities profiles.

While it is truly wonderful that it has generated such media interest, Wall-E and I would like to use his nomination (Yes, Wall-E really was nominated) to explain a little more about this crippling and as yet, incurable disease and which charities to donate to for research into a cure.

Amyotrophic Lateral Sclerosis (ALS) is the US term to describe what we in the UK we call Motor Neurone Disease (MND)

A motor neuron is a nerve cell that makes voluntary muscle movements.
ALS/MND is a disease in which these cells stop working properly.

ALS/MND affects a person’s ability to move voluntarily.
ALS/MND stops people eating, walking and talking, for example, but doesn’t stop them from thinking or feeling, effectively leaving sufferers ‘locked in’ to their bodies.

You can donate to any charity of your choice, UK information here:

Text ICED55 followed by an amount (such as £5) to 70070

Call 01604 611860 referencing the 'Ice Bucket Challenge'


http://www.mndassociation.org/news-and-events/Latest+News/the-mnd-ice-bucket-challenge

Thank you Metro for the only informative article we could find this morning.

http://metro.co.uk/2014/08/19/ice-bucket-challenge-what-is-als-4838330/

Wall-E nominates:
Anyone who can share this information.
Anyone who is able to donate, however small the amount.
and
Anyone who would like to raise awareness of an illness currently affecting themselves, family or friends.

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