Inspirational

Working at a conference at Edinburgh Uni - the FDSSUK Annual Conference. FDSSUK is the Fibrous Dysplasia Support Society UK which aims to encourage, promote and assist a better understanding of Fibrous Dysplasia and McCune-Albright Syndrome. This woman was amazing - talking about her experiences with the disease and what she has been able to do despite it. She has a job, her own flat and drives a specially adapted car. For her, one of the best things recently was being able to host her parents for Christmas dinner last year, albeit with a bit of help with the preparations. Just like any other twenty-eight year old in fact. Truly inspirational.

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