TimeLapse

By JillyMint

Flowers

One-off rant at my bad luck
I've not been too good of late. Basically it's been 2 months since I was diagnosed with MSA instead of parkinson's. I still haven't seen a specialist despite having had MRI scan and I am still on the 'old' Parkinson's medication regime. I'm rapidly developing the cruel symptoms of MSA but the worst thing is that I am wracked on a daily (and now last night as well) basis with constant (like a labour pain of 2 or 3 hours) and debilititatingly painful muscular spasms across my chest (leaving me crippled and breathless) or in my face (like gurning for 4 or 5 hours). Apparently the correct medication can alleviate some of this.
I have lost 2 stone and will sooner be fitted with a gastric Peg. I really can only swallow food of porridge consistency.
My speech is so bad that friends and family have trouble understanding me let alone full time carers, doctors or heaven forbid if I venture out and try to buy anything from the shops! I've stopped driving (I can hear you saying phew!); my lovely car is for sale to cover care costs.
What else? Oh - I am still in my beautiful home and supported by the most loyal, loving and caring friends and family who are feeling utterly helplesss because they can neither stop the progress of this awful disease nor, at the moment at least, stop my pain.
Other than that, everything in the garden is rosy (well maybe not as tidy as it was last year..) I am fortunate that I can still appreciate the beautiful world around me and I have been given time to tell people how much I love them. But sorry people - the book's off!
Rant over. No more said (I can't type now anyway)

I have removed comments because I just want you to give someone a cuddle instead.

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